Scattered pieces

The theme for this months Expressive Arts Carnival is:

Through drawing, painting, or any other visual means, create an image that represents a major obstacle facing you now.

My first reaction when reading the directive for this month’s carnival, was to write the letters “ME” on a page, and send it in.  It feels more and more as if I am my own worst enemy; or probably more accurately, my thinking is.

My disordered thinking is evident in all areas of my life, but is particularly problematic at work – where I’m doing the job of about two people, but reluctant to make waves by saying that I’m swamped; within therapy – where I hold up any negative interaction as a reason to further beat myself up mentally, and use as a gateway to more self-injury; and finally with my relationship with food – where small things like being told that I must have three meals a day in order to have the antibiotics I was prescribed last week, caused a major panic.

I know that all of these factors are inter-related symptoms of an underlying cause… the problem is, that the symptoms are screaming so loudly, that it’s difficult to see, or hear the motivations behind it all.  It is for this reason, that I’ve chosen this abstract photo of a red canna lily to represent both the scream of the symptoms, and the underlying motivations.

This scream is my obstacle… and my path to healing.

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Now playing: Counting Crows – Rain King
via FoxyTunes

Winnie

1994 – 28/12/2011

Forever resting under the Pohutukawa…

Sunbathing (2011)

On alert (2009)

Disdain (2008)

Today, I ventured outside for the first time in months.  Yes, I’ve been going to work, and doing the bare necessities in the way of chores; but I haven’t been outside for anything other than that for a long time.  It was also the first time I’d picked up my camera in months.  These are some of the photos I took…

Duckling

Ducklings

Waxeye

Lion fountain

They mean different things to me… from the cuteness of the ducklings, through to the almost desperate stance of the lion.

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Now playing: Brooke Fraser – Lifeline
via FoxyTunes

About three months ago, things in my little world, for want of a better phrase, fell apart.  Things had been slipping for quite some time before that, but there was a final stressor which caused an extreme internal reaction.  I look at the few posts that I’ve published since that time, and they’ve talked of my disconnection with the world… my withdrawal from those around me.  This feeling was starting to seem chronic.  Hopelessness had settled in, and there appeared to be fewer and fewer options available to me.

Then, this past week, I started to see some glimpses of hope… lots of little things started to add up to create a bigger picture -  reading The quiet room: A journey out of the torment of madness by Lori Schiller and Amanda Bennett; reading several blogs which talked about our inner resources; and reacting to Marsha Linehan “coming out” about her own history of mental illness.  What these all created was not a new awareness, but a reaffirming of an old one… I wasn’t disconnected from the world… I was disconnected from “me”.

The rest of the world didn’t see the problem, because I was still functioning in it.  I was still going to work, doing what was required of me, and going home.  I was passing for human really well.  But because I had lost all sense of my internal resources and connection, there was no substance to anything that I was doing.  I could voice an opinion, but it came purely from an intellectual place, with no feeling behind it…  It’s only when you combine the intellectual and emotional, that you can fight for your opinion to be heard and understood.

So how do I get back to “me”?  Well, I’m not so sure.  I know that I need to bring a sense of balance, acceptance and safety, into my life.  All of these elements are in pretty short supply at the moment.  I’m aware that there’s a huge fear associated with looking inward to see what can bring me back to level ground.  I know that it’s about going back to the basics… reading, drawing, photography, reflecting…  But, I’m not so sure how to accomplish this.

Writing this post was my first step.  It’s an acknowledgement that I need to pay attention.  That I can’t keep on going as I have been…

So, in the interest of trying something different, I’m going to tell the story behind one of the photos that I took while walking around the Wellington Zoo…

I took this photo as we were on our way to the exit.  What captured my attention, was the chatter of the little girl.  She was talking non-stop, and part of me was expecting the Dad to tell her to be quiet and calm down… instead, he listened to her.  He responded as if he was giving her his total attention.  When she wanted to exchange hats, he went along with it… saying how cool she would look with his hat on… he even helped her with the great hat exchange.  After making sure that his hat was securely on her head, and that she was content with arrangement, he then put her hat on… all the while, he kept on walking and chatting as if it was the most normal thing in the world to do.

This man walked away, listening to the chatter of the little girl, with hats exchanged, and a pink backpack on.  Doesn’t he look like a “cool dude”?  Yet he didn’t lose patience with the girl and her innocent request… did I mention the pink backpack?

It was one of those moments where my past experiences, and what I was seeing, clashed.  It took what seemed like ages to calm the inner chaos that was created by my expectations that this man would become angry with the little girl.  I know that I could only be seeing the public front that this family put on, but I don’t think so.  The little girl was so secure in her position in his arms.  There was no stiffness in her posture, and the chatter was the free and easy chatter that I know occurs with children who are loved unconditionally.

While this scene brought hope, it also brought confusion and grief.  I was mainly aware of the hypervigilence and confusion at the time, but I know there was grief for what will never be…  I can sense that now.  That has to be progress, doesn’t it?

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Now playing: Sia – Breathe Me
via FoxyTunes

The theme for this months Expressive Arts Carnival is:

Through drawing, painting, photography or any other visual means, create an image about mechanisms you have used to cope when you thought you could not.

I admit it, I have a love/hate relationship with coping mechanisms.  I’m often told by mental health professionals that I know plenty of coping mechanisms…  I’m often told by the crisis lines to “go do your coping techniques”…  Both of these statements have a tendency to annoy me.  While they’re both true, I also see them as a cop out.  So I know plenty of coping mechanisms, does that mean I can’t learn any more?  Yes, doing various coping techniques help me when I’m feeling overwhelmed; but by the time I’ve called the crisis lines, I’ve usually been doing them for at least 12 hours straight and need some support beyond what the coping mechanisms can provide.  So while I see the need for coping mechanisms, I sometimes approach them with a sense of dread.

Even after all of these years, I still label the activities “coping mechanisms”, which can sometimes cause an odd tension.  I know that I need to do them in order to help keep me present and safe; but because of the connotations surrounding their use, it feels as if they are assigned a label, and trotted out on special occasions.  This is even for the techniques I have managed to build into my life as part of my routine and attempts to enrich my life.  One week I may go out and take photos because I feel like it; but the next week, taking photos becomes a coping technique which must be carried out in order to keep the crazy at bay.  Same activity, but totally different meanings.

It can be challenging to use coping techniques.  They can act as a distraction from the emotions which threaten to overwhelm, but they also encourage you to sit with the emotions without “checking out” through the use of the old, less healthy means of coping (self-injury, etc).  It can also be challenging finding ones which work… something that works one day, might not work another.  Even realising that you are worthy of using a healthy coping mechanism, instead of self-injuring, can be difficult.  There are times when no matter what I try, I’m still swept along with the old ways of coping… but I’ve found that the more I get angry at myself for that, the more anxiety there is the next time I begin to get overwhelmed.  That’s not to say that I accept that the self-injury has happened, I don’t; instead I try to learn from it.  The more I can learn about the triggers and the motivations, the more likely I am to recognise the warning signs, and try different coping mechanisms before it’s too late.

My entry for this months carnival is an indication of my attempts to learn about new ways of coping.  Last year, I underwent a psychiatric assessment to determine my level of impairment.  I don’t react well to any assessment, but this one was particularly difficult.  I wrote a history of my abuse… something that I’d never done before, and it caused a great deal of turmoil and confusion.

I knew beforehand that I might react badly to the assessment, so I made plans to try and help myself cope with it all.  I arranged for some time off work, asked my mother to stay, and organised a trip by the sea as a reward for getting through the assessment.  On one level, these arrangements made sense… I was unlikely to be able to function at work, so arrange some time off work, etc.  But, on another level, they were also attempts at self care and utilising positive coping mechanisms.  Trying to understand my limits, and working within them.

Not everything went as planned, and there was some serious bumps along the way.  Probably the most challenging time was when I went away for the trip.  What should have been a restful time at the beach, turned into a messy contradiction in terms of coping and safety.  At times, I could go for a walk along the beach and feel the sense of peace; but at times, I was swept away by the emotions which were stirred by the assessment.  After one particularly bad night, I forced myself to pick up my camera and go for a walk.  I walked for hours… something that is rare for me, as I usually need a purpose when going out.  During that walk, I took the photo below.  It’s not my best photo, but it represents a time when I was struggling so desperately to stay present and safe.  If I’d been more present, I would have chosen a different angle, and camera settings… but as it is, the photo shows my attempts to connect to the environment around me. It’s not perfect, but it stills works… especially if you squint a bit, and tilt your head to the right.

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Now playing: Natalie Merchant – Wonder
via FoxyTunes

Yesterday I wrote a happy shiny summary on 2010.  It was accurate, and covered many of the positive things that had happened last year, but it wasn’t an accurate reflection.  The purpose of a reflective exercise is to put the past into a learning framework, and that’s what I failed to do.  By looking only at the positives, I sidelined and ignored the struggles I faced, and how those struggles influenced the positives.

When looking at the overall themes of last year, it’s easy to see that I was concentrating on safety and consistency.  To me, these issues are intertwined.  I’m at a stage in my healing where I need a consistent structure in order to find safety.  If this structure is absent, as it was when my therapeutic relationship with Liz disintegrated, and my friendship with Matthew fell apart; there were serious consequences for my safety.  I lost an anchor that I had relied on – no matter how dysfunctional it was, and I allowed it to push me into a downward spiral.  This was even more evident, when my cynical work friend started having an affair with a married man.  The triggers associated with the relationship were too close to my parents relationship, that I was unable to relax around her like I used to.  Unlike the rupture with Liz and Matthew, I was able to maintain an altered friendship with my work friend.  The key difference, was that with Liz and Matthew there was hurt in the present, whereas I had the awareness to realise that my work friend wasn’t hurting me directly in the past or present.  I may not agree with her moral choices, but the friendship was maintained, if somewhat modified.

Throughout the year, I’ve had ACC decisions hanging over my head.  This was one of the drivers which lead to my suicide attempt, and to my withdrawal from life.  The thought of a faceless case manager deciding my therapeutic fate, without having ever met me, basically did my head in.  This is a fairly consistent story across many sensitive claims clients.  The power imbalance in favour of ACC, is such a trigger to the old abusive situations, that it’s difficult to work your way through to a rational interaction with them.  Despite my fears, the assessing psychiatrist was incredibly supportive and gentle.  He gave me a significant impairment which should hopefully allow me to access therapeutic care for awhile yet.

This leads onto the therapeutic relationship with Allison.  I’ve avoided talking about her and what happens in therapy, mainly because I want to protect the relationship.  As with any human relationship, there are ups and downs, but the strength of Allison, is her ability to encourage me to slow down.  My default coping mechanism is to dissociate and rush through anything that feels scary; but Allison is helping me to realise that this doesn’t have to happen.  I can tolerate the emotions that are a part of living.  They may scare me, and I may not understand what I hear within sessions; but what is said and felt, is me.  It’s that simple, and that complicated.

I still struggle with denial, minimisation, comparisons and other circular thinking.  But, Allison helps me to work through this through validation and acceptance.  She doesn’t encourage blind faith, and is open to questioning about the validity of what is being said, and her experience with dealing with what I present.  Not that I challenge her on a regular basis or anything… well, actually I don’t as much as I did.  There is a sense of respect towards Allison, even if there isn’t consistent trust.

Last year, I also briefly saw WPT and an occupational therapist.  They were at opposite ends of the helpful spectrum… WPT helped me realise that by saying how strong the young ones within the system were, I was re-enforcing the idea that they were meant to stay strong and protect me.  This was so obvious, but yet, I thought I was showing respect by mentioning their strength.  But the young ones need care, not more pressure.  In contrast, the occupational therapist was not a good therapeutic match.  She reminded me of a cross between a cheerleader and an unskilled kindergarten teacher – lots of loud enthusiastic talk, with very little substance or experience.  Thankfully she discharged me after meeting one of the three goals we’d established.

One of the things that worried me about seeing these other therapists, was that I wondered if my life would revolve around therapy and healing.  Considering my work commitments; this would be unlikely, and it would probably have been helpful if they had worked out.  But, there was that nagging fear that I would start to define myself and my life through my mental health.  Which when I consider that I spent so much time this year caught up in self injury, the change of focus to healing, might have been a good thing!

Yes, my old nemesis… self injury.  It also bumped into my suicidal ideation and intent this year, which wasn’t a pretty sight or feeling.  But a shock can sometimes be good for the system, and near the end of last year, I got one.  It wasn’t the suicide attempt, but instead the health of a friend bringing up all sorts of memories.  Consequences, accountability, fears and reality all collided.  Repercussions were felt throughout the system, and as a result, one dangerous form of self injury has been largely controlled.  There is yet to be any sense of accomplishment about this, and there is a fear that the triggering presence of the mother is going to release a tidal wave of self injury this weekend.  All I can do is plan for it not to happen…

So much of my life now, is about trying to live from moment to moment.  I had hoped to be further along in my healing than this by now, but I’m not.  This isn’t to take away from the accomplishments that I have achieved, but rather a sense of “not again”.  This Christmas, I did cope better than the previous year; but then I had hayfever, so could barely speak or raise my head.  The hayfever has eased, and with that, the triggering memories and intolerance of the mother has returned.  The mother has been here two weeks, and that’s about three weeks too long.  Wish me luck for the rest of the week…

As so much of my year has been on exploring the creative arts, I thought I’d do the following summaries of the positive, and difficult work that I’ve been doing.  As a warning, the second (Polyvore) video may trigger.

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Now playing: The Beatles – Here Comes The Sun
via FoxyTunes

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Now playing: Yo-Yo Ma – Unaccompanied Cello Suite No. 5 in C minor, BWV 1011: IV. Sarabande
via FoxyTunes

Floating high above the pain
Turn away…
Don’t see
Don’t hear… don’t feel

Come, let’s play
Let’s forget about what’s happening below
Look, how many flowers can you see in the wallpaper?
How loud can we sing?

Many days past, playing near the ceiling
Then a tipping point…
Uncle came along
With needs and acts depraved

Floating high above was no longer enough
Singing did little to hush the screams

Come into The Attic
I built it just for you
White and pure
No shadows, no pain

I will protect you
Hide you
Keep you safe
Forever

This partial poem was written by Carrie (the protector of The Attic), before today’s emergency therapy session with Allison.  It was meant to tell how, and why The Attic was created.  It told us that, and so much more…  It told us where the current suicidal ideation is coming from.

Carrie guided the innocents into a place of safety within The Attic; all the while seeing the acts causing the dissociation.  Carrie’s whole world revolves around keeping those within The Attic safe from abuse.  So, when The Basement started to become involved in the healing process, Carrie saw healing as a threat.  She stills sees the world as an evil place – self-injury, child abuse, inequity, intolerance and hate all still occur.  Therefore, it’s a world still unsafe for those in her care.  The only solution she sees… suicide.

This is what I took into Allison today.  Because of the new clarity surrounding the issues, it was a really productive session…

We talked about the poem and image created about The Basement/Vault, and what it meant.  She was curious as to why the image was so imbalanced – with the box being so much smaller than the image representing hopes and dreams.  At first, we thought we had the meaning behind this image sorted, but her questioning made us rethink it.  In an image that I considered to indicate hopelessness and a sense of fear, she managed to show us hope.

Then our familiar nemesis… ACC.  ACC contacted us yesterday to tell us the final results of our latest assessment.  Immediately, M was wanting to fight the decision.  But by the end of the night, she was rethinking the need to fight.  She stood back and looked at the toll our interactions with ACC have had on us over the years… two suicide attempts and countless instances of self-injury.  Was that fight worth it?  In some ways, it is.  The fight gives M something to focus on, and something to be here for.  We’re used to fighting…  there’s a comfort in fighting something external.  But, it’s not healthy.  Allison asked what would happen if we directed the energy expended on fighting ACC into something healing… how’s that for a dose of reality!

Finally, how to help Carrie.  This was difficult.  Carrie has only ever come forward once or twice in therapy, and that was about 3 years ago.  We didn’t really get any sense of having resolved the problem, or the reason for the suicidal ideation.  But, we acknowledged that Carrie’s fears are real and tangible.  Allison tried to show how there is beauty in the world too… I’m not sure if she succeeded or not, but when we were walking back to work, we saw the blue sky for the first time in what seems like forever…

I’m not naive enough to believe that I’m safe.  But, there is a spark of hope that’s been absent for a long time.

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Now playing: Creedence Clearwater Revival – Have You Ever Seen The Rain?
via FoxyTunes

The last two days have been kind of rough.

Heading into Thursday, I was feeling good and had managed to pull myself onto some sort of steady ground.  That all fell apart late Thursday afternoon, when I got an email from the other team leader, calling into question the quality of my work.  That email sent me plunging back into self-doubt, self-hatred and all the other associated negative thinking.  My cynical friend told me to forget it; but it was such a back-stabbing insult that I couldn’t brush it off.  To make it worse, my own team leader wasn’t around to reality check the content of the email, and I didn’t want to run to the manager about it.  This spun me out to the point where I knew I wasn’t safe to drive home.  I stayed on at work for a couple of hours, before driving home and losing most of the evening to the dissociation.

Then, on Friday morning during my drive to work, we went past a “hurt” cat in the middle of the road.  I always dread this sort of thing; not only does it stir up the system because an innocent animal has been hurt, but it’s a trigger for some of the younger ones.  Like a deer caught in headlights, we can never look away… we started reciting “it’s just a jumper that fell out of a car”, hoping that this will change how we see the cat… it doesn’t.  This means we now have adult parts smarting from the insult to our work, and young ones upset that an innocent cat has been hurt.

So we’re now driving down the road reciting out loud “it’s just hurt, it’s ok, it’ll get up soon and the people who love it will come get it and take care of it”.  There was also a promise that we wouldn’t drive home that way, just in case it hadn’t been moved.

Work on Friday is mostly a blank… I know we had a morning tea for the two new people, and that the manager made a triple layer banana and pineapple cake (which did a rather spectacular topple over during the cutting process).  I also know I played around with the iPhone app kooaba, as we’re looking at new ways to try to deliver information through technology such as QR codes and visual recognition apps.  This was fun because we were going around the library, taking random photos of books, CDs and DVDs to see what information kooaba would return.

Then it came to the drive home… all the way up the street where we should have turned off to avoid going by the stretch of road where the cat had been hurt, we were consciously thinking of turning.  Then there was this little mind fit, and we were suddenly past the turn off.  I could hear the panic, but there was also this firm voice telling me to stop being so silly, that there will be nothing there, and it will all be fine.

Thankfully the cat was no longer there, but that didn’t matter, the panic had set in.  We were switching all over the place and I could feel our throat closing up.  Little Michelle came forward full force, meaning that we couldn’t really drive, talk and only barely functioned enough to get home in one piece.  Because we live in a high fenced section, no one saw us getting out of the car shaking like a leaf and stuttering about it hurting.

We got inside, fed Winnie, turned on all the lights, curled up in the corner of the lounge and tried to ease the shaking.  I had no real sense of what was happening, but there were obviously body memories.  The throat was closed off, and no matter how hard I tried, I could barely stutter.  I managed to take some anxiety medication and send the following email to Allison…

turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide
turn all the lights on an hide

hide got to hide
he’ll find us

I think we finally went to bed at about 8am (it was naturally light by then) and slept for a couple of hours.

Saturday had been good… we’d talked to a friend and took some pictures of the stuffed toy we got for the young ones as their reward for going through the divorce proceedings…

This made me think that tonight was going to be easier… the fear seemed to have eased.  But it’s now 1am Sunday and all the lights are on again.  Little Michelle is ok as long as all the lights are on.  We’re also ok as long as we don’t even think about going to bed.

One of the big problems with this scenario, is that it opens us up to further dissociation and self injury.  We’re so switchy and shaky…

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Now playing: Missy Higgins – Where I Stood
via FoxyTunes

I took this photo awhile ago now, but today it means something to us… We call it “Journey”…

Journey

.

When we look at this picture today it means many different things to us -

• Journey into the light from the dark – a journey of hope
• Journey of danger as a child is lead away to disappear with the man beside him
• Journey of death, with this light at the end of the tunnel being what you see upon your death
• Journey of innocence as the child plays happily beside the safe man
• Journey through the holding pens, ready for death at the meat market.  People before these two have left their last messages on the walls, only for it to be covered up like graffiti…  If you look at the image large size on black, you can see the hand marks made on the ceiling as a last attempt to leave something behind

This jumble of messages is how we are at the moment, a messy jumble of thoughts, both good and bad.  We’re not sure where our journey is taking us, but at the moment it feels like things are shifting internally.  I’m not sure of the reason – maybe it’s returning to work, maybe it’s the two year anniversary of the attempt on our life by our then husband, maybe it’s our healing work…  I’m not sure, but I wish we were more settled and safer.

While growing up, I tried very hard to be the perfect daughter.  I was polite, quiet, obedient, a good student, tidy, shy and seemingly happy.  This is the daughter my mother knows and loves.  She doesn’t know the daughter she is now faced with.  She doesn’t recognise the woman who can’t go outside unless it’s for work; the woman who will stand in the middle of the kitchen and start scratching her hand while staring into space; the woman who says that she can’t serve up dinner because the food has suddenly become dirty and disgusting; the woman who sits on the Internet until 2am because the idea of sleep is too scary for her and she needs the distraction.

This week, the mother has been faced more and more with the daughter she doesn’t know or recognise.  The session on Monday with Liz stirred up all sorts of issues internally and I’ve been struggling to cope with the reaction.  It got to the point on Tuesday night that there was going to be some fairly serious self-destructive behaviour occur if there wasn’t some intervention.  That intervention came in the form of someone coming forward to take photos.  They realised we were too unsafe to drive anywhere, so the usual routine of driving somewhere to take photos was out.  Instead they decided to use some props from around the house to see what they could do.  The mother could tell we weren’t well, so she ended up helping by having a look for different props to photograph and holding the torch we used as a light source.  This is one of the results…

Apple

Because the mother helped us with all of this, she could monitor us more closely.  She said that it wasn’t until after the photos had all been taken and we were putting them onto the computer for processing that we sort of “came back”.

Awhile ago, Sophie tried to apologise for the not being that perfect daughter the mother remembered.  The mother said that we were probably never that perfect daughter, but she didn’t see it.  She didn’t see what that perfection was hiding.  I think she really does want to help sometimes.  But her own dysfunctional thinking and lack of healing, mean that she will never really be able to help us.  I don’t resent her inability to help us, but I do wish that she would seriously look at her own need to heal.  She went to therapy for a couple of sessions, but then stopped as she thought it wasn’t going anywhere.

I’m aware this makes us sad or uncomfortable or something.  I’m not good at naming or understand emotions, but I noticed that the body was feeling very cold and I need to do up the jersey we wore to work.

Time to go back to being the perfect working daughter…

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Now playing: U2 – Running to Stand Still
via FoxyTunes