Scattered pieces

Floating high above the pain
Turn away…
Don’t see
Don’t hear… don’t feel

Come, let’s play
Let’s forget about what’s happening below
Look, how many flowers can you see in the wallpaper?
How loud can we sing?

Many days past, playing near the ceiling
Then a tipping point…
Uncle came along
With needs and acts depraved

Floating high above was no longer enough
Singing did little to hush the screams

Come into The Attic
I built it just for you
White and pure
No shadows, no pain

I will protect you
Hide you
Keep you safe
Forever

This partial poem was written by Carrie (the protector of The Attic), before today’s emergency therapy session with Allison.  It was meant to tell how, and why The Attic was created.  It told us that, and so much more…  It told us where the current suicidal ideation is coming from.

Carrie guided the innocents into a place of safety within The Attic; all the while seeing the acts causing the dissociation.  Carrie’s whole world revolves around keeping those within The Attic safe from abuse.  So, when The Basement started to become involved in the healing process, Carrie saw healing as a threat.  She stills sees the world as an evil place – self-injury, child abuse, inequity, intolerance and hate all still occur.  Therefore, it’s a world still unsafe for those in her care.  The only solution she sees… suicide.

This is what I took into Allison today.  Because of the new clarity surrounding the issues, it was a really productive session…

We talked about the poem and image created about The Basement/Vault, and what it meant.  She was curious as to why the image was so imbalanced – with the box being so much smaller than the image representing hopes and dreams.  At first, we thought we had the meaning behind this image sorted, but her questioning made us rethink it.  In an image that I considered to indicate hopelessness and a sense of fear, she managed to show us hope.

Then our familiar nemesis… ACC.  ACC contacted us yesterday to tell us the final results of our latest assessment.  Immediately, M was wanting to fight the decision.  But by the end of the night, she was rethinking the need to fight.  She stood back and looked at the toll our interactions with ACC have had on us over the years… two suicide attempts and countless instances of self-injury.  Was that fight worth it?  In some ways, it is.  The fight gives M something to focus on, and something to be here for.  We’re used to fighting…  there’s a comfort in fighting something external.  But, it’s not healthy.  Allison asked what would happen if we directed the energy expended on fighting ACC into something healing… how’s that for a dose of reality!

Finally, how to help Carrie.  This was difficult.  Carrie has only ever come forward once or twice in therapy, and that was about 3 years ago.  We didn’t really get any sense of having resolved the problem, or the reason for the suicidal ideation.  But, we acknowledged that Carrie’s fears are real and tangible.  Allison tried to show how there is beauty in the world too… I’m not sure if she succeeded or not, but when we were walking back to work, we saw the blue sky for the first time in what seems like forever…

I’m not naive enough to believe that I’m safe.  But, there is a spark of hope that’s been absent for a long time.

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Now playing: Creedence Clearwater Revival – Have You Ever Seen The Rain?
via FoxyTunes

The activity for this months Expressive Arts Carnival is to:

Use any visual means (e.g., drawing, painting, photography) to represent, in an abstract way, your experience of all or part of your internal world. The key to the activity is to focus on an abstract representation. The reason for this focus is that it helps us to describe our experiences in a way that is not so familiar to us.

First off, I’m not good with abstract thinking or art, let alone putting the two together; so this activity has proven to be a bit of a challenge.

Saying that, here are our  attempts to represent what our internal world looks like…

Internal World: Part I

This one was heavily influenced by M.  It’s a very structured view, and I think comes from her place of being a little apart from the rest of us.  I think it’s possibly more of an abstract system map, rather than a representation of our inner world.

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Internal World: Part II

Well, our internal world according to Aimee and K (with help from Sophie)… They like the baby moose playing, and the mother moose always watching to make sure nothing will hurt them :)

I’m not sure if this is really a representation of our internal world for a majority of us, but I think it’s accurate for these two young ones… or how they’d like it to be???  They also love the clip, so wanted an excuse to put it on the blog…

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Internal World: Part III

In the shadows, waiting.

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Internal World: Part IV

Which leads to the final representation… the one that all of us agree to some extent represents our internal world, or a very important part of it…

Shadows…  The lower left corner represents areas which are in total darkness, while the upper right corner represents areas which are flooded with light. These two extremes are linked by varying degrees of shadow intensity.

This was an interesting exercise to do… Thank you Paul for providing the prompts.

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Now playing: Five For Fighting – 100 Years
via FoxyTunes

So, long time no posting…  I wish I could report some wondrous reason for my absence, but unfortunately not.  The only reason is pure dysfunction.  The reason for the dysfunction are my lessons for the week…

Lesson 1: Remember, listen and pay attention

I’m often reminded of the ripple effect any incident can have in a dissociative system.  Something that doesn’t even register as a ripple to you, can be tidal wave to another part of the system.  So when I briefly posted an entry on this blog that contained the words “good girl”, I had no idea what the consequences would be.  I didn’t sense any real warnings about the meditation when I read the original entry.  But then, I don’t think I was really listening and paying attention to what was happening internally.  I was thinking of sharing what I thought was a valuable resource with others – librarian mode in full flight.

The first hint that things weren’t right, was a message from S:
“I’m no ones good little girl”

Once I saw this message, I edited the entry to something I thought was safer. Ellie tried to reassure S -
Ellie: “it’s been changed”
S: “too late… pay the consequences”
Ellie: “it’s been removed, no need for consequences”

The thing is, I should have known not to use that phrase – it was listed in one of the original trigger inventories that I did early in my healing journey.  But I was arrogant, careless and disrespectful.  I was thinking of sharing a resource, more than I was thinking of the ones who carry the wounds.  There were consequences to using that phrase, and it’s impossible to blame her.  I trampled all over S and her triggers, so why should I expect niceties in return?

Yes, it would have been great if S could have dealt with the situation differently.  But, it also would have been great if I’d thought about what I was doing.

Did I really pay attention inside? No.
Did I think about the phrases I was reading and using? No.
Was I being a self-important pompous twit by finding something that others might find useful? Yes.

I was thinking of myself more than the system.  No wonder they don’t trust me.

Lesson 2: Be responsible for your own safety

Yes, the consequences of my actions meant that S lashed out.  The flashbacks were horrific and all consuming. This allowed the ones who are dangerous to come forward and, for want of a better word, play with the body.  But before we reached this point, I had the opportunity to ask for help from Allison and the crisis team.  That would have been the sensible thing to do, but what did I do instead?  Basically, I set Allison up for failure.  I was unable to say the words “I need help”.  Instead I buried the message in emails from M and the young ones tried to tell how scary it was within therapy.  It wasn’t surprising that Allison couldn’t work out how bad things were.  But her inability to read all the messages that seemed obvious to us, meant that she had failed.  So after therapy on Monday there was a dangerous incident that meant we ended up in respite care for two nights.

The truly sad thing, is that even after the incident, I wasn’t able to communicate to the crisis team that I was still in danger.  Both Sophie and M were telling the team that we were in danger, but also didn’t want to cause a fuss, so were going along with their plans to send us home.  When it became obvious that this was going to happen, a very restrained Frank came forward and indicated how unstable we were.  At least some part of me was willing to step up and protect us.

So this is what I’ve indicated to Allison that we need to work on immediately, my inability to communicate the level of danger I’m in.  I need to know how to read the signs within the system and communicate it clearly.  I know I’m hampered from this free communication because so many of the young ones are triggered by hospitals, and our fear is that if we are honest about how bad things are, we’ll end up there.

If I’d been honest today, I probably shouldn’t have been released from respite.  But respite was different this time.  I was in the same place, but the carer in charge for the week was different, as were the mix of the clients.  This threw the dynamics off to the point where it didn’t feel safe.  It felt like my house growing up; rather than the healthy, vibrant place that the other carer made it.

I know I’m not out of danger yet.  I’m seeing the crisis psychiatrist today, so I’ll get another chance at trying to be honest about my level of danger and establishing what options are available to me.  I’m almost resigned to a hospital stay… some think this would be a good idea, especially in the secure ward where we can release some of the pent up emotion in a safe environment.

So at the moment I feel like a complete and utter failure.  I put the system under more stress at an already stressful time, and I didn’t take adequate steps to protect us once the damage had been done…  Yup, a failure.

Note: Please be aware that I am getting support, I’m not putting this out there and expecting readers to save me… although donations gratefully accepted (especially therapy vouchers) – you know, just saying :)

It’s often been said that small acts of kindness mean so much. I don’t know where the quote comes from, but it’s truth is re-enforced daily.

Today I saw Liz for the last time, the “rupture” during therapy on Monday couldn’t be worked through to a point where we felt we could continue seeing her. I’m seeing the Mental Health Crisis Team psychiatrist on Friday to see what can be done to help me through the public health system.  Because of all of this, I was feeling pretty low.  As a distraction, M thought she’d check our work emails. Right at the top, was one from a lecturer we had done some information literacy teaching for last week.  We were expecting it to be some criticism, as it felt like such a bad session… this is what he wrote…

Hi

Thanks a lot for teaching my class the other day. I was very impressed by the amount of care that had gone into your presentation

Matthew

This on a day when we were at our lowest in a long time…

Small acts of kindness mean so much…  What may seem to be an insignificant gesture, can touch the person who receives it in ways you’ll never imagine.

I thank those who have commented and sent words/thoughts/wishes of support while I’ve been blogging about my healing journey…  At different times they’ve given me hope, laughter and pause for thought… Thank you.

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Now playing: Green Day – Time Of Your Life [Good Riddance]
via FoxyTunes

It’s become obvious that I’ve been withdrawing from everything lately.  It always starts slowly… I’ll sit at my desk, rather than go out with the others for breaks at work; I’ll leave the car out with the intention of going to take photos, but end up putting it away a few hours later because I’m “too tired” or it’s now “too dark” to take photos.  I wasn’t really sure why I’ve been withdrawing, or rather, which particular stressor was causing the withdrawal.  I only knew that is was happening.  Yesterday, I moved one step closer to eliminating one stressor – the dissolution of my marriage.  The laws in New Zealand require you to have been separated from your partner for two years before you can dissolve the marriage (get a divorce).  That milestone was up on 14 February of this year.  So we took the papers to the Family Court to start the official process… it was an interesting trip which caused the activation of ones that hadn’t been present for quite some time.

We took two hours off work to take the papers to court, thinking that would be plenty of time for the fairly simple matter of handing over some papers and paying a fee… how wrong was I!

It started off well… we went into the Family Court reception and were served by the nice lady who took our Protection Order application nearly two years ago.  She checked the forms, notarized them where it was appropriate and double checked that none of our personal details appeared on the forms to protect us from any contact from the husband.  Then we asked some seemingly innocent questions about what would happen next… in particular asking about how he was to be notified of the dissolution when we didn’t know where he lived…  This is where the smooth operation came to a screaming halt.

“What do you mean you don’t know where he lives?”  The slightly stunned clerk asked…
“Well, we actively try to avoid knowing anything about him because of the Protection Order.”
“So, what’s this address here…” as she points to the address we’ve listed.
“That’s his lawyers address.”  We reply, thinking it makes perfect sense to serve the papers to his lawyer.
“You can’t serve the papers to his lawyer, it has to be him in person.”
“But… I have no idea where he is.”
“You need to try and find him.”

At this point, the clerk confers with another worker about the situation and asks what my options are…  Meanwhile we’re dissociating, spinning and trying to keep it together despite the internal chaos… we can’t find him… don’t make us have to find him… don’t make us talk to him or his family again…

After a rather convoluted discussion, the clerk comes back to tell us that we have to try and find him through any means necessary; but if we can’t, we can fill in another form to say that the papers can be served on his parents…  But we still need someone to serve them… Someone over 18 to serve the papers to them in person…  Someone would have to go to his parents house, knock on the door and give the papers to them…

This news brought another round of dissociation and internal noise… we can’t go to the witch’s house… she hates us… she’ll yell at us… please don’t make us!

Thankfully another woman yelled out that we could pay someone from the court where they live to serve the papers on our behalf…

This just left the problem of trying to find him!  So off to the public library we went, looking for electoral roles…  We walked there thinking it would be quicker than taking the car, but on the way there was all sorts of activation by different parts… Can we buy a toy?  Oh look, a sale!  Can we go see that movie?  That’s a pretty dress. The desire to get sidetracked was immense… there was so much panic about trying to find the husband.  With each comment, suggestion or pull, M tried to assure each one that we would go back later, but that we really needed to find the husband to make us all safe.

We found that the husband hadn’t changed his details official details from when he lived with us.  We tried telephone directories and the Internet, but couldn’t find him.

There was another round of attempted distractions on the way back to court, but M deflected each one.  When we returned to court, we filled in even more paperwork to say that we’d tried to find the husband.  All the while, the internal noise was getting louder and louder.

It was only when we were driving away that the noise quietened.  So much so, that by the time we got to a toy store, to keep the promise of buying something later, all the young ones had gone quiet.

On the surface, I can see the noise and chaos was an indication of our stress about the situation.  But, I think it goes deeper than that.  It was about our fear of having to do anything to do with him, fearing possibly having to see him again, fear that he will react when he gets the papers…  It’s also about dissolving the marriage, and therefore admitting we made a mistake in getting married… it’s an indication of our failure.

I still feel the anxiety, disconnection and withdrawal from life… I don’t quite know how to ease that.  I’ve tried making an appointment with my psychiatrist to get a review of my medication, but need ACC approval and funding before I can go – which means it could be several months before I get in to see him.  This week, I’m wanting to quit therapy…  I cancelled Jo and have come close to cancelling Liz several times.  Everything about therapy annoys me at the moment – trying to talk, all of Liz’s responses, her making us draw when we retreat and can’t talk…

We found this photo called Just Red by Burning Image… it’s a good representation of how we’re feeling…

Dear young one,

First of all, you are young.  You are not a little adult, you are a young girl…  This alone should explain so much to you, but it won’t because I know you are fighting and struggling to make sense of the world you find yourself in.  You are strong, brave and stubborn…  You take on so much of the world around you, that it is hard to make you out as an individual identity.  But, please remember that you are a young girl…

I sense that you need to hear the words “I forgive you”, but there is nothing to forgive you for.  You did an amazing job holding it all together when those around you were hurting you and themselves.  I’m so sorry that you had to take on this burden of abuse.  This burden had nothing to do with how pretty, thin, attractive or loud you were…  there are no reasons why… there are excuses, but no reasons.  I’m not sure what will ease your sense of guilt and ownership over the abuse… I could quote you research about alcoholic fathers, absentee mothers, sibling rivalry and a society built around ignoring the child as an individual with rights, but I know that you will look for excuses within that research… You will look for any proof that the abuse was, and is, your fault.  So I won’t hand you that information to confuse you further, instead I would like to do what should have happened long ago… get down to your eye level, look you straight in the eye and say “It wasn’t your fault”.  You hold no blame for what happened, they were events done to you, not by you.  Even the events where you are sure you were the instigator, you weren’t.  You were trying to find new ways to protect yourself and ease the burden.

I stand in awe of what you accomplished through all of the pain of what was happening to you.  Do you know that?  I don’t know how you did it.  You have a strength I cannot fathom.  The amount of times you picked yourself up and kept on going… the amount of times you looked towards the pain and kept on going.  I’m so proud to consider that you are what I have come from.  You excelled in all that you tried – I have the reports which tell of your intelligence, I’m told you moved with grace and poise on the dance floor and you played above your grade in sports you enjoyed.  I know you consider these accomplishments nothing, and I wish you could tell them with pride.  But what really amazes me, is that you defended those around you whom you thought were being picked on.  Your sense of social justice remained intact, despite all of what happened to you.  Not only did it remain intact, but you actively found ways to defend and help those who were being victimised.  You couldn’t succeed all the time, but you tried… and kept on trying no matter what.

I’m not sure that I will ever understand what happened to you.  Looking back, I don’t know what advice I could give you that would ease your burden.  I could say “don’t trust people”, but then I wonder if you didn’t have some form of trust, whether you would still hold to that sense of social justice?  I could tell you not to go near the kindergarten playground, or near that woodshed… but I know that this wouldn’t solve the problems you faced.  I want to protect you from the pain you faced, but I know I am helpless to do so.  My only hope now, is to help you heal.  I’m not sure how to do this, and in this I need your help.  I need to know what you need, and when you need it.  I try my best to help you heal, but I know I make mistakes.  I hope you forgive these errors… I know this is asking a lot of you, especially when so many people have let you down in the past, but I again need you to be strong.  This is a different strength, this isn’t about putting up with more pain… this is about telling me when it hurts, telling me when you are scared, telling me when you need help.  We all need help young one, but it takes strength to ask and receive that help…

Thank you for all you have done for me, young one.  You have given me so many gifts, it is now my turn to return some of those gifts, if you will let me.  You will notice that I don’t mention the word “love”… I avoid using this word as we all know that I don’t understand the concept… instead, please understand that I respect and admire you.  I couldn’t have made it this far without you…

Yours sincerely,
M

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Now playing: Anna Nalick – Breathe
via FoxyTunes

M is not particularly good at communicating, while she may have a solid reason for any decision, this is often no communicated well to the rest of us.  So when she was reluctant to call the crisis team, I thought she was blocking our attempts to achieve safety, or possibly protecting the young ones in her care from the trigger of going to hospital.  I was wrong.  Her greatest fear was realised, the crisis team can’t do anything to help us stay safe.  She wasn’t worried about the respite care or the hospital, she’d prepared her young ones for that; she was worried about them not being able to do anything.  In some respects, what happened was worse – we had several phone conversations with a very nice and understanding crisis nurse who explained about coping mechanisms and grounding techniques, but informed us that there were no respite beds available.  After referring to our notes and talking to us for over half an hour, she assured us that the nearly full local psychiatric ward wasn’t the right place for us.  Instead she encouraged us to continue with our coping mechanisms and taking it a day at a time.

It was the worst case scenario, the crisis team were trying their best, but don’t have the resources to help us.  The were polite, friendly and called back twice to check on us, and to try reassure us that we can do this.  It was devastating.  This was M’s biggest fear… we need safety and we can’t get it.  We’ve now officially tried all of our options.  There is nowhere else to turn.  Sometimes when we’ve called the crisis team, the service has been so bad that it’s kicked us into a release of anger that has driven us through the suicidal ideation and out the other side.  It’s acted like a release on the pressure valve.  We couldn’t even get that today… the nurse was so polite and trying to suggest ways to get appropriate boundaries in place with the mother etc.

In many ways our suicide attempts have appeared impulsive… there’s been a final trigger that has pushed us over the edge.  But the plans are well thought out, just waiting for that final trigger.  This is what we fear may happen again.  In many ways we’re calm and functional – when we told the mother we were calling the crisis team she asked when things had got bad again, we explained that they’d never been good.  I know this could be an indication that the mother has no clue as to our true level of functioning, rather than any indication of how we appear to be coping, but it gives a hint as to how we appear to the world.  The crisis nurse could see through the veneer, she said we sounded in trouble, she just couldn’t do anything about it.

When the crisis nurse confirmed that there would be no assessment and there were no places, we were in tears.  We were crying because we gave up on getting help.  We know that no one can do this work for us, but we’d really like some help to get us through the rough patches…

As a warning, this might not be one of my most rational entries – and there have been some pretty irrational ones over the past year…

Today we went to see Liz for our scheduled appointment.  It was a monumental disaster.  We had to talk about a report for ACC to ensure we continue to receive funding (yes, this funding seems to be a continual battle).  We were in protection mode, pretty much shut down with Sophie only able to look at the keys she was playing with in her hands.  We’re very aware that ACC want to see improvement – no matter how small.  But, we haven’t improved much and if we put that in the report, we would probably end up being sent for a psychiatric assessment.  We had this knowledge sitting in the back of our head and were trying to tailor our answers as a consequence.  Then Liz casually dropped a bombshell…

“We can’t have you functioning too low or out of control or they’ll refer you to mental health services for the DBT programme.”

This is one of our nightmares… being sent to DBT in New Zealand.

I know people are helped by that programme every day.  I know it helps with emotion regulation and mindfulness… I know it could potentially help me immensely.  BUT over here, there is no streaming or grouping according to functioning, you are placed in the first opening they have.  There aren’t any evening courses, so I’d end up having to take time off work.  This means that I could end up in a group which is incredibly low functioning and triggering for me.  I don’t cope well with groups, so I’d sit there like a stuffed dummy, avoiding the whole situation – I didn’t talk once during a Mindfulness course which lasted for six weeks.  What’s worse is that it will odds are trigger M to come forward to protect us, so we’d end up appearing saner than the therapists and be ticked off as “cured” very quickly.

Yes, I know this hasn’t happened and was just an idle comment by Liz… but with the changes in ACC policy, it’s a very real possibility.  I never thought I’d say it, but please let them decide that I need a psychiatric assessment.  Anything but DBT.

The flip side of this conversation, is that we now think that we’re too much for Liz to cope with and this is her way of introducing the idea of us moving on to someone else.  So the concept of testing her with our trust, went flying out the window.  Again, I know that she hasn’t said that she’s going anywhere…  It’s just our damaged perception of what happened.

Problem is, our damaged perception seems very real right now.