Scattered pieces

A good friend recently mentioned that she felt like she was going to fall, and fall deeply.  Part of her was expecting, and almost wanting the fall to happen.  Thankfully, her fall hasn’t happened, and I hope it doesn’t; but what she describes is a feeling I know all to well.  It’s like standing on an edge, waiting for that last push to send you over into a mental health free-fall.  The scary bit about standing there, is that you have an awareness about where you are.  You know that one more negative thing is going to push you over, and part of you wishes that it would come so that it’s over with; but another part of you hopes that you can still claw your way back to safer ground.  It becomes a tug of war between different parts of you…  This alone is so tiring that it can be enough to tip you over…

I know I’m also moving closer to the edge.  The stressors in my life have kicked into high gear and I can feel the pressure building.  At the moment, I’m far enough away to know that I’m in danger without being too close to it.  A part of me niggles that I’m thinking myself into moving towards the edge – why do I think of my ex-husband, why worry about the ACC assessments etc.  But the rational part of my brain knows that I’m experiencing PTSD flashbacks and my worry is justified based on past assessments.  This is the beginning of the tug of war that intensifies over time.  Soon other issues will come in to muddy the waters – denial, and a need for validation have already started to appear.  All of this increases my anxiety levels.  I’ve experienced this often enough in the last few years to notice the pattern…  It becomes like a dance, to and fro… ever closer to the edge…

The problem becomes, how do you stop the dance?  If I called a crisis line, they would take me through the individual stressors I am facing and encourage me to break them down into solvable chunks.  This would work for some of the issues I’m facing, but they can’t help with the PTSD symptoms.  I saw Jo today, and she was recommending trying to ground in the present, and while I agree with her reasoning, I also know that I can be very grounded in 2010 and still keep on dancing towards the edge.  Some of the grounding work can make the situation worse – repeating “it’s the 26th of January, 2010 and they are just memories” can morph into a denial statement about the memories all being made up.  The most effective way of keeping the anxiety at bay is to consciously breathe deeply – this also tends to by one of the first things I forget to do.  Like many survivors who experience anxiety, I have a form of hyperventilation syndrome, with my breathing being short and shallow.  It takes a conscious effort to alter my breathing pattern to a healthier depth and pace.  Changing my breathing will temporarily ease the anxiety, but often this isn’t enough to stop the dance towards the edge.  I’m not always sure what moves me away from the edge, I think this time it will be the formal dissolution of my marriage and completing the ACC assessment.  If this is the case, I’ve got about another three weeks of doing the dance around the edge.  I don’t think I’ll fall, but a part of me thinks I will…  A part of me wants to fall, because they think that this is what I deserve…

And so the dance continues…

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Now playing: The Feelers – Stand Up
via FoxyTunes

I noticed a very odd thing yesterday while playing FarmTown on FaceBook…  My issues with having a large personal space, seem to translate to my online avatars.  In FarmTown, you can go to market to sell your produce and see if someone wants to hire you to harvest their crops or plow their fields.  If you’re waiting to be employed, your avatar can be “standing” with a number of other avatars for a period of time.  There is a certain amount of psychology that goes into the strategies behind being hired – the “spammer”, where you repeatedly ask to be hired; the “dancer”, where you move around or get your avatar to dance on the spot; or the “loner”, where you get your avatar in a spot alone so they’re easily noticed.  I’ve always adopted the “loner” strategy, and have always attributed this to my game strategy.  I now realise there might be something more to it.  I can sometimes cope with another avatar being near or overlapping mine for a short period of time, but never long – even my ugly little avatar must have a large personal space.  For those of you who think I’m being cruel about the relative ugliness of the avatar, you obviously haven’t seen FarmTown graphics – they’re UGLY!

I wonder if this is an indication that I’ve been playing the game too long and are therefore personalising it too much, or whether I have extreme boundary issues.  When Carol (previous therapist) asked me about arranging the room in a way that I felt comfortable, we did an exercise about personal space.  In order for us to feel even mildly comfortable, we had to be in one corner of the room and she had to be in the opposite corner.  We would’ve preferred for her to be outside the room, but that wasn’t feasible.  During therapy with Carol, we’d often end up on the floor tucked around behind a cabinet that she had – this was mainly when the young ones were present.  They often felt a need to hide and create physical barriers between us and Carol.  During sessions with Liz when the young ones are present, there is still a pull to sit on the floor in the corner, but we’re too scared to do it in case it makes us look too odd.

We felt that need to sit in the corner today during our session with Liz, Aimee and SO were strongly present and felt like hiding.  It was a rough session in many ways – the main topics of conversation were denial and self-injury.  It brought up a very odd concept of how to cope with the denial.  We’d tried to construct a basic timeline of events to try and create some order out of the memories, but had found it too difficult to write them down.  We got about four events written, but then the derealisation started.  As this way of coping and “getting the memories out” hadn’t worked, Liz suggested something which is too bizarre for my very literal brain – think the memories or whatever is bothering me onto a piece of paper, fold it up and give it to Liz to keep.  This will mean that we don’t have to worry about those pieces of information again as they are being kept safe and separate from us.  To us this didn’t make sense…  How do you “think” something onto a piece of paper without writing it down?  How does giving Liz that piece of paper signify anything?  It was all too abstract and alternative for our very concrete, narrow way of thinking.

A therapist once told us that our education was lacking because we hadn’t studied any of the Arts.  That’s true, we don’t understand the beauty in art, music or philosophy.  In many ways we deliberately avoid studying them, because if the intellectuals amongst us get hold of the ideas they have this tendency to strip away the magic and enjoyment.  So we take photos because they’re fun… we listen to Beethoven, Foo Fighters, Brooke Fraser or any music because it moves us at the time… But when it comes to having to think through an abstract idea, we need the intellectual ones to come on board with some assistance.  This is fine, unless they get faced with something which they can’t dissect or reason through logically, then it sort of gets lost in their cynicism…

Last week I knew that I was going to talk to Liz about denial.  In many ways I see my denial as attention seeking – like I’m wanting Liz (or whomever) to say “of course it happened” or “you’re right, it didn’t happen and you’re just attention seeking”.  It feels manipulative to be in denial, like I’m playing games.  But then, when I’m in the denial, it seems as if I’m playing games when I say that the abuse happened.  It’s an awful place to be in.  You have the clarity to see your actions in the past and you judge those actions, every word or behaviour is analysed and destroyed.  As a perfectionist, I’m my own worst critic, so nothing is spared.

Liz questioned me as to why this was happening now, when 2 weeks ago I said that I needed to turn and face the past, instead of continuing to run from it.  I’m not sure of the answer to that question.  I think it is partly due to the stress that I’m faced with – wedding anniversary, disastrous visit from my mother, yearly performance review at work, etc.  Objectively I understand that I may be stressed and this is what has caused the denial/lock-down, but I don’t get any sense of being stressed.  When I’m like this I don’t feel much of anything, sort of like I’m on auto-pilot.

In order to sort through some of the issues, Liz said that I needed to try and re-frame the anniversary into a new context as a way of trying to move forward.  We were nearly out of session time, so this was very much a passing comment.  I know what she means, but this year it was impossible to do.  I’m not aware of any real reaction, other than losing great chunks of time.

I almost broke through the denial yesterday by listening to Beethoven’s Grosse Fugue, but it didn’t last.  As it’s a long weekend in New Zealand, I’m not seeing Liz this week.  Possibly the wrong time to have an interruption in sessions, but it couldn’t be avoided.

I’m dreading looking at the dissociative walls again – whether it be to knock them down, or to reinforce that they never existed to begin with.  I know that this is not a positive place to be in, but I’m not sure how to move beyond it.  I also know that living like this is full of contradictions…  How can I be losing chunks of time and not be dissociative?  How can I have no personal history beyond newspaper headlines and not be dissociative?  It’s confusing and yet meaningless all at once, for when I’m like this, I only live in the present moment with headlines as reminders of what I need to do.

It feels very odd and very normal all at once.

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Now playing: Sting – Fields of Gold
via FoxyTunes

Please note that this entry may trigger.

“Are you safe?”

This is the question I’m often asked by a friend who knows the extent of my self-injury.  I often hesitate in answering, not because I don’t want to answer, but because I don’t really know what “safe” means.  When you’re a survivor of abuse, your goalposts surrounding the concept of safety often shift – it could be that “safe” becomes not being physically assaulted, but still experiencing psychological abuse.  This is what most of my marriage was like.  He rarely hit me, so I thought I was “safe”.  This sort of understanding ignores the broader definition of safety as being secure from danger, harm, or evil.  Many survivors wouldn’t know what that sort of security means or feels like.

It was interesting when I was asked this question today, I hadn’t been safe over the weekend and I realised that I didn’t particularly care.  This isn’t because I’m suicidal or tied to a feeling of deserving the self-injury, but because I don’t have any sense of it being negative or being “me”.  Up until last week I was actively trying to work through the self-injury so that I knew what had triggered it and could potentially prevent it in the future.  That’s all changed.  I’m no longer worried about preventing it, because I don’t have any sense of it impacting on me in any way.  I know this is a dissociative event and compartmentalisation, but I can’t move beyond that knowledge into any solid concept of it doing harm.  I know that this is probably tied to the denial that I’m currently experiencing, but I don’t get a sense of needing to move beyond that denial.  This all could also be contributed to ACC still not approving any further sessions with Liz, I’m not sure.  I know that this is a potentially dangerous place to be in, but it also has it’s benefits.  I’m moving back to my high functioning at work, I’m enrolling for another qualification and am getting back to exercising regularly.  This is close to my functioning during the middle years of my relationship with my ex-husband, when I was considered high-functioning and an asset.

I’m not sure of what to make of it all and I get a sense that I don’t want to analyse it.  All I know is that the screaming inside my head has gone.  Everything is back in the boxes behind the wall.  I don’t even get a sense of that having occurring,  I just get a sense that this is what has happened.  It’s both confusing and totally clear at the same time.  When I saw Liz on Monday, I mentioned the denial and she responded that I wasn’t wanting to look at the past.  But I don’t have any sense of the past, I don’t need it or want it.  All I have a sense of, is my life becoming a tickable list of things to do – mow the lawns, check FaceBook, go to bed and read for an hour, etc.

Not quite sure what is happening, or how long it will last.  But it’s an easier life than the one filled with anxiety, flashbacks and suicidal ideation.

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Now playing: Brooke Fraser – Lifeline
via FoxyTunes

“Unfit for work…” those words sting, they really do.  They’re the words used to explain why I won’t be able to work for the next 12 days.  They’re part of the standard form that the doctor fills in, so it’s nothing personal, but it means failure to some of us.  We know that our functioning at work has been so poor that there was no other choice, but it still cuts us to the core of what many of us perceive as our self-worth.  M in particular, is struggling with being put off work, yet she was the one who made the appointment and mentioned the problems we were having, knowing full well that enforced sick leave was the likely outcome.  M couldn’t hand the medical certificate over in person – it would be like admitting failure and having to face the disappointment of those around us; so we left it on the team leaders desk with an email message apologising for the inconvenience we were causing.  Some of us consider this the wimps way out… failing to face up to our responsibilities and the repercussions of our actions.

This morning we got a text message from our cynical work friend asking how we were.  I wasn’t sure how to respond, I know that in some ways I’m trying to protect her – she’s got enough on her plate without hearing my sob story.  So I sugar-coated what was happening.  No one at work was expecting us to have this time off, so it probably came as a shock.  I suppose this is one example of how we can appear so high functioning, but really be a total and utter mess.  What I fear the most is the reaction when we get back to work… will people alienate us, want to hug us, avoid talking about it?  At their core, the people that I work with are good and kind people, but they don’t understand mental health issues.  This means that I will odds are lie about what has happened when I get back to work, I’ll find some acceptable lie that doesn’t make them squirm.

This week we’ve also seen Jo and Liz…

Jo became quite worried about our safety after we did a collage with her.  It can be quite amusing on one level to see Jo’s art work which is all about love and happiness, while ours is dark and full of violence.  We both had mindless woman’s magazines to use as base material for the collage.  I had words like key, disappear, invisible… Jo had love and rainbow.  I had a picture of a puppet running through a door… Jo had a smiling woman on the beach.  She was concerned about our safety to the point of contacting Liz.  Poor Liz also now realises how much we were testing her when we first started seeing her – with Jo we go with the flow, but with Liz we resisted and argued at the beginning.  This wasn’t deliberate, but rather an unconscious way to see whether Liz was going to be able to help us heal and put up with what we could throw at her.

When we saw Liz, it was what I would consider a disaster.  Little Michelle came forward and made it almost impossible for us to speak.  She has such a problem with words and forming them that it’s like she is stuttering, but I don’t think it’s a true stutter, I think it’s more about not wanting to tell the secrets.  At one point, we were stuck on one sentence, and in particular one word… “I’m not special“.  We were so incapable of saying the word special, that we ended up having to write it down.  Little Michelle stuttered through explaining that she wasn’t “that word” to anyone, because if you were “that word” you then got hurt.  She wanted to runaway so that the pain would stop.  Liz offered to runaway with her, but Little Michelle said that no one else was allowed to come.  All the time this was going on, there were ones in the background yelling that she was telling lies and it’s all rubbish.  This was the first time the messages about it all being lies were so closely tied to someone saying anything.  Little Michelle shared no abusive events, but her presence alone was enough to stir-up the denial and nay-sayers.  That probably means something in psychology land, but to us it just felt crazy.

So we have 11 more days before we are allowed back to work…  We’re meant to relax and unwind…  This is terrifying!  Work is our structure, our safety.  Suddenly we’re meant to do this thing called relaxation and rest.  We’ve actively avoided doing either of those things for about 20 years…  Today we survived by going down to the gardens and taking pictures with the new lens’ we got the other day.  Not sure how we’re going to cope with another 11 days of this.

Here’s a random photo we took today…

Cherry blossom

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Now playing: Shihad – Pacifier
via FoxyTunes

Note: This post could be triggering, please read with care.

There was once a little girl who got hurt by the people who should have taken care of her.  This experience taught her about keeping secrets, packing the bad things into containers inside her head and to forget about most of the bad things altogether.  She became good at playing the parts and emotions that were acceptable to those around her.  Compartmentalisation and dissociation became her way of life.

As this girl grew, the dissociative walls became higher and more entrenched.  Her core beliefs were that she was a nuisance, stupid and ugly.  But she wasn’t a victim.  Oh no, she knew that bad stuff had happened, but she believed that it happened to every little girl, and no one else seemed to be complaining.  So when the girl became a woman and met a nice man, she didn’t tell him about the bad stuff; instead she listened to his stories of being abused by his sister when he was a boy.  She didn’t understand how that could have happened to this seemingly big, strong man.  It made him cry and she comforted him.

So began, what would become 8 years of physical, psychological and sexual abuse for that woman – us.

In many ways, the man came into the relationship more honest and open than we did.  He said he’d been abused, we didn’t. We got so caught up in his past that we didn’t say anything about ours – we didn’t really consider it that bad or worthy of talking about anyway.  Abuse was what we had come to expect.  So when he raped us for the first time, we dissociated it away and considered it normal.  Besides, he was good to us – he gave us flowers, cooked for us and treated us with a form of delicate care (when in front of other people) we’d never experienced before.

A pattern developed over time, he would have a crisis of some sort and we would save him.  He needed us to be strong, so we were.  We were hardly innocent within this scenario.  The woman at work used to feel sorry for him as we appeared to pick on him and order him around.  I can understand why they would get this impression – he needed to be saved and we needed to be a saviour.  The weaker he became within his work and mental health, the stronger we had to be, and the more he would abuse us when no one was looking.  The strength we showed to the world was one of us organising our world to gain some control.  When we got behind closed doors there would be a dissociative switch to one who enjoyed the pain that he inflicted sexually and physically.  He became good at triggering our switches, so we built the walls inside our internal house higher and stronger.

About four years into the relationship, we were in a side impact car accident.  We sustained a mild concussion.  In that one instant, our lives changed forever. Our coping mechanisms fell apart.  Suddenly we were weak.  Suddenly he had to be strong, but he wasn’t able.

He had been intermittently seeing different therapists over the years, but had never seen one for more than three sessions.  They were always useless or changing their fees or playing games…   We realised we were in trouble and started counselling again.  He began to self-injure, often in front of us or because of us.  He was fired from his job for assaulting a supervisor.  We tried to be strong, but were slowly falling apart.

He got a job as a security officer – a job where he could “get some respect”.  We also changed jobs.  But nothing fixed the things that were happening in each of our heads or in that house.  We were two people who had serious mental health issues crashing into each other.  We became suicidal and were regularly assessed for danger, always to be released back into the care of the strong man who was now our husband.

On the 9th of February 2008, we attempted suicide.  It wasn’t our most serious attempt, but it landed us in A&E and then the secure psychiatric ward.  On the 10th of February 2008, the strong man took us home.  What followed is blurry, but I know M made a smart arse remark to him about how he needed to grow up.  He then showed us how strong he was by trying to kill us.  His level of violence scared him and he called our mother, screaming that he’d done it this time and it was all over.  The mother thought he’d killed us.  When she talked to us, she asked if we wanted someone to come up to be with us.  Sophie said “yes”.  With our family there, he couldn’t cope with what had happened, so left the house on the 14th of February 2008.

Looking back, I can see how our different issues collided to cause what happened.  If he’d married someone who wasn’t dissociative, this probably wouldn’t have happened.  We were so conditioned for abuse, if it hadn’t been him, it would’ve been someone very similar.  Could we have ever made it work?  I doubt it.  He was not interested in healing.  He paid lip-service to therapy, but wasn’t prepared to invest the time and energy.  I was too defensive and in deep denial.  I wasn’t prepared to heal myself, instead I was so caught up in his problems that he was all I could see.  My life became about fixing him.  He has refused to attend the court ordered counselling as part of the Protection Order, so I don’t think he’ll ever heal.  I hope he does and proves me wrong…

The following clip is one we did a year ago to try to work through the events surrounding the marriage.  It may trigger.

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Now playing: Powderfinger – Sunsets (acoustic)
via FoxyTunes

Tonight we have been triggered badly. It’s always a slap in the face when the angry ones step forward, usually we don’t have any memory of them or what they have done, but tonight they left the residual feeling of anger when they left. We’re still shaking from it.

It’s such a contradiction to have the daily functioning states which are usually happy, being so quickly overwhelmed by such darkness and hatred. The violence!!!!!!!!!!!!!

This has stirred up all the ones that have issues with running away and needing to escape. For the first time in a month we’ve been close to texting our normal therapist to ask for help. Tried grounding techniques such as breathing, walking, playing games, petting our cat… Nothing so far has helped. We’re trying this to see if it will dissipate the feeling.

In all the craziness we wrote this (poem????)

I am…

I am 3
Sore
No move
Run
Hide

I am 4
Why?
What I do wrong?
I sorry
I be better.

I am 5
I have the best daddy in the world
My daddy loves me
They all lie about my daddy
I’m the favourite

I am 7
Why me?
Did I walk wrong?
Did I look funny?
Need to be invisible.

I am 8
I am not your special girl
I hate you
I love you
I have to be ugly so no one will look at us again.

I am 13
How dare you
Don’t do that ever again
Dare you to try it again
I don’t care what you do to me

I am 16
No more please
Not again please
Noooooooooo
It hurts too much

I am 25
Hush little girl
I will do this
Go away
This is a mans game

These were the little snippets from parts at that age. Some are still at that age. They’re stuck in that hell, denial, protective state… This had better start getting better soon.

Here we go…

As indicated in the profile, we’re a Dissociative Identity Disorder system that has been built up over the last 37 years to protect a little girl who was hurt by people who should have protected her. We were first given this diagnosis over 3 years ago and still struggle to accept it as a reality. Yes classic denial… But who wouldn’t want to deny a known history that is littered with abuse?

I’m very aware that as soon as the DID diagnosis is mentioned, there are those who will sit in judgement of whether the person claiming to be DID is a “faker” or attention seeking person with Borderline Personality Disorder. While I feel no real need to justify myself, and what we as a system experience, I will state that we’ve been tested for BPD and the other personality disorders and found not to meet the criteria for any of them. As a system we are high functioning and keep a full-time job, pay taxes, avoid hospitals, keep appointments and generally are just like anyone else out there. So there’s no gain from me stating that I am part of a DID system. None of us are expecting any attention from writing to this blog, the only motivation for the blog is to try to express our experiences so that we can understand it further.

So why write a public blog? Strangely enough it will be one of the only ways to force the writing to occur. Have tried maintaining a private journal with no success and this may fail as well – who knows?

The first time we were aware that we might be different from other little girls is when the father told us to stop talking in all the funny voices. It was just the different parts speaking as themselves, which we then understood to be bad. Because of this we created a part to act as our spokesperson – problem solved.

Will see if we write anymore…