Scattered pieces

Yesterday during lunch at work, I had no idea who I was.  I had no idea what my name was, how old I was or where in the world I was.  There was a sense of detached wonder about being able to use the computer… “wow, I can use this thing”.  I had no memory of learning how to type, or even how to use my body to do basic things such as pick up my cup.   Everything seemed so big, scary, and yet wondrous at the same time.  It also seemed really bright… the artificial light in the office felt like I was looking directly into the Sun.

This is yet another sign that the dissociation is out of control… this was a young one from our internal Basement, in charge of the body, while at work.  That can’t happen again.  It’s not fair to the young one, or to the ones who usually attend work.

The problem is, what to do in order to get some sense of control back?  We’re actively doing all the coping mechanisms we can think of – breathing, taking breaks at work, distracting, grounding etc.  But I’m still a mess.  I’m constantly getting flashbacks of some sort… I’m seeing things out of the corner of my eye (psychosis or a lack of sleep?)…  It feels as if I’m constantly on the edge of switching – that spacey, free-falling feeling…

There’s also dread… I don’t WANT to know why I keep on seeing flashbacks of the changing rooms at the rugby club; I don’t WANT to know why L&P is suddenly a trigger; and I don’t WANT to know why I keep hearing certain phrases over and over in my head…  I’ve had enough…  Surely there can’t be more.

But, I also know that I need to listen and try to understand what’s happening internally. I know this is the way to healing… listening, understanding and easing the pain.  But, I don’t think I have the strength to do this anymore…

Below is a something that was created while at work earlier in the week.  I’m not good at art – I got a D for it in school.  So I’m unable to translate what is in my head into something that is recognisable in practice.  I keep trying to tell myself that art within a healing context is more about the feelings, than the technique… but I still can’t get past how bad it looks in comparison to what was wanted.  It’s so frustrating when I can’t find a way to express what is going on in my head…

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Now playing: Cat Stevens – Moonshadow
via FoxyTunes

I’m not good with boundaries… I know this. When the dissociation and switching increases in frequency, my scant understanding of appropriate boundaries goes out the window. This was (yet again) evident earlier this week, when Matthew Branton asked (a perfectly legitimate question) about having a place within the blog where new readers could get an understanding of my background and the experiences that brought me to this place in my healing. This question, in conjunction with reading Matthew’s account of his past, and Faith Allen’s series of posts about her past on Blooming Lotus; meant that a part of me took this question very literally… Suddenly there were over a 1000 words on a new page within the blog which described my family and what I have been told about my childhood up until I was a toddler. There was a real drive to write this history out, but that need came from a part of me that didn’t understand the implications for the rest of the system. They are a part of me that always obeys a suggestion or request without question. The ultimate people pleaser.

You’ll see that the page is no longer on the blog, I’ve hidden it. I realise that I do need to write out my history, but I need to write it out for Allison’s eyes only. It would be too easy to piece together my history, and find out who I am in real life from the detailed account that was being generated… that just can’t happen! I would risk losing my career and being labelled with all of the negative stereotypes that those with mental health issues carry. I hate the stereotypes and misinformation about those who deal with mental health issues every day, but I’m not in a strong enough place to fight it. Also, to be blunt, librarians are a bunch of close minded, gossiping old biddies… if they discovered that I have DID, I would never get another job within New Zealand.

After talking to a friend, I realised that I can still write a summary here about my past, but I don’t have to go into so much detail. This is where I need to learn about the appropriate boundary. How much do readers of this blog really need to know about me? Does it matter that I’m the youngest child? Does it matter that I have no memory of what any of my family looked like as I was growing up? These are the questions that I need to ask myself, and take my time answering. So, I will put up a new page that carries a summary of my experiences, but it will take me some time to come to an internal agreement as to what I can reveal safely.

The other boundary issue I’ve been facing this week, is the re-decorating of my rented house. I knew that the landlords were going to re-decorate the house sometime soon, but on Monday I got a call from a painter saying he’d be starting Tuesday; so, could I leave a key to the house under the mat to allow his team access to the house. Now, I know I should be grateful that the landlords are doing the work – the wallpaper was peeling. BUT, STRANGE MEN WERE GOING TO BE IN MY HOUSE WHILE I WASN’T THERE. They were going to be moving my stuff. They were going to be walking in my house… the house that I worked so hard to try and make feel safe. It caused havoc within the system.

On Tuesday when we came home, the wallpaper had been stripped from the walls, but the house wasn’t too messy. We could cope with a great amount of deep breathing and locking all the windows and doors – then re-checking them every hour or so. But on Wednesday when we came home, they had painted the woodwork, which caused a huge mess. They’d been careless with our possessions – our cats food and water bowl were spoiled with paint dust, there was paint on our wooden dresser and they’d carelessly knocked over our things in the bathroom. We’d also had to do some teaching that day, so it was all too much… What I’m really proud of though, is that we didn’t self injure! We were in a mess, but One remembered Paul’s oil pastel artwork, so found our old pastels and got us to draw instead of injure. This is what we drew…

Swirl

Black Red

I’m not really aware of what happened as we were drawing these, or even what they mean.  But, I know that there was a great deal of energy used on the second one.

We were hoping that they would be finished the redecorating on Friday, but it looks like they didn’t do any work at all that day. This, in combination with a rough day at work and being the anniversary of when Sophie and R were born due to an abusive event in the past; meant that last night there was a total loss of control. I only came back to any sort of awareness late Saturday morning.

What’s interesting about this latest event, is that I’m being told “You won’t tell that b@t@h Allison about this.” I’m not sure if this is a statement of fact, a challenge, or a derisive comment on my inability to talk about the tough issues in therapy. But I know that this time, I do need to tell Allison… I need to get outside help for the dangerous dysfunction. So, that’s what this weeks therapy is going to be about… wish me luck!

This latest round of confusion and self-injury, has made me aware of how little internal communication I now have. The dissociation has ramped up several notches, and my old skills have been lost (or maybe misplaced). Trust has gone, and it feels like I’m starting from scratch again…  For some reason I was reminded of this old Telecom ad… Maybe it’s the message about communication being the first step… and maybe about communication starting with the children/young ones…  Or, as is now being suggested internally, maybe I’m just a sap :)

Friends

Oh, and on a positive note… I’m the lucky “god-fearing” person chosen by Miss Linda to help her money launder retrieve $22 million from her fathers estate. The poor man was poisoned by his business colleagues (nasty men), and her only hope to get the money out of the Ivory Coast, is through me. I’ll be the lucky recipient of 15% of this sum, so it’s all good… my money worries are over! This is also a much better offer than last weeks one from Mr Philip, a lawyer from England… Strange how a lawyer would track me down as a long lost relative, when I never use my real name in any of my email addresses… but then, he’s a lawyer with wicked mad skills apparently ;)

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Now playing: Cat Stevens – Where Do The Children Play?
via FoxyTunes

So, we have a new therapist… Let’s call her Allison.  We’ve had two therapeutic sessions with her, and one introductory session to see if there was a possibility that we could work together.  I’ve been studiously avoiding talking about her here, I think because I’m scared of jinxing the relationship.  Here’s a quick run-down of what’s happened so far…

Introductory session
We were switching like crazy, a revolving door of different ones checking her out and asking different things that we knew had been issues in the past.

M asked about what happens to her clients when she goes away – this I know is because we tend to (for want of a better term) “fall apart” over Christmas.  One previous therapist asked us to contact her if this should happen, and another had no provisions in place for a crisis over this time.  I don’t think either approach is helpful for us, as we feel like an imposition contacting a therapist out of hours – especially during their Christmas holidays; and the lack of support led to a downward spiral that ended up with us going into respite care.  Allison assured us that, if we wanted, she has another therapist who will see her clients while she is on holiday.

W asked about religion.  This is a huge issue for her, as she sees herself as inherently evil and gets very triggered by the concept of religion.  Allison was open about believing in living a spiritual life.  While this did raise flags for W, it wasn’t a show stopper.  What was interesting, is that Allison mentioned that those who are brought up within a strict religious environment, often exhibit significant signs of abuse.  This was mentioned in the context of my father, who was raised within a strict religious doctrine.  So, it was about putting life experiences into context, not meant as a comparison or justification.

The other big question was, “are you going to cope with us?”  There are huge trust issues with therapists.  I can honestly say that each of the therapists I’ve seen in the past have tried to help us, and wanted to see us live a full life, free of many of the debilitating symptoms we currently experience.  But for various reasons – their approach to DID, a lack of skills, or being out of their depth, it hasn’t worked out.  After the rupture from Liz, all the feelings of being too difficult, too much and being a trouble maker came up again.  Allison mentioned that she was one of the top therapists in our small city.  This rankled M a little, as she saw it as boasting.  But, I understand that Allison was trying to reassure us.

So, after much internal discussion, it was decided that we’d keep seeing Allison.

First session
This was mainly taken up with housekeeping type of information – brief talk about what symptoms we wanted to address first, what other support systems we have, and how we are coping.  It was a difficult session, where at one point, W was nearly sucked into a flashback.  What was interesting, was Allison’s reaction to the near flashback… she asked us to look at her in the face.  Now, we don’t look therapists in the face – yes, this may be considered rude by some people, but we can’t bring ourselves to raise our eyes above their boots.  During work, we can do eye contact no problem, so it’s just within the therapeutic relationship.  Allison kept on about us looking her in the face – to prove that our reaction to the near flashback didn’t upset her, or cause her any distress.  We had to switch to M in order for this to happen, but we managed it!  And yes, it did help.  She sat there very calmly and greeted M as if everything was fine.  Hmmm… so maybe she can cope with minor crazy… let’s see about major crazy…

At this session, we discussed having fortnightly sessions, due to monetary constraints.  Since then, we’ve realised that the crazy making between sessions is too much for us to cope with, so have gone back to weekly sessions.  Who needs money for food anyway :)

Second session
This was a really difficult session.  It came off the back of Mother’s Day (those of you with the password to the protected posts will see the two word feeling that some of us have towards the day), and our up-coming birthday.  It was predominantly Sophie and B throughout the session, until Mother’s Day came up.  Then woohoo… lets step on the crazy freight train.  The desire to self injure went through the roof… Allison was particularly interested in the ways the self-injury was manifesting and who was potentially holding the needs and desires to hurt.  She talked about the anger we hold as pertaining to the mother… and then “flick”, Aimee came forward.

Suddenly it was all bright and breezy, talking about the calender on the wall that hadn’t been flipped over for the new month, the old heater that was in the corner of the room and other diversionary tactics.  Allison welcomed Aimee, which was a huge relief (her type of diversion had been discouraged with some therapists).  They were chatting along nicely, until Allison, as part of the normal conversation, said the word “shadows”.  This meant an immediate hiding by Aimee… she is absolutely terrified by shadows.  Shadows within our internal house represent evil, danger and the angry ones.  So Allison’s innocent comment caused a trigger switch to a stuttering teen.  We hate it when we stutter.  It’s usually only in therapy, and it’s just awful.  Of course, the more we try not to, the worse it gets.  The stutterer explained what had happened, and assured Allison that in no way was she to blame – she had no idea that such an innocent word could have such devastating effects.

Overall, we’re not sure about Allison.  She is good with the silences… both allowing the silence, and bringing our attention to what is happening during the silence.  She’s good at slowing us down, and getting us to try and notice things.  But, we still think we’ll be too much for her.  This is not because we’re the “worst” case of DID or anything, it’s just a mix of the old messages from the childhood, being re-enforced by actions of therapists who were out of their depth.

So, we’re still fence sitting.  She has shown the most promise of the therapists we’ve seen so far…  But, it’s hard to judge things accurately because we are so dissociated from life.

If anyone has had the “joy” of a comment from us over the last week or so, it’s probably been bordering on rude, pompous or left field.  We really shouldn’t comment when we’re so dissociated.  We again had a comment not published on a therapists site, this time because of our side-ways hostility.  That’s a classic sign that we’re not communicating internally, and M is running parts of the show without input from the calming influences of B and Sophie.  I’m not sure what will get us back on track…

Ok… so, the big stuff… the stuff I’ve been studiously avoiding for the last probably two to three weeks… maybe even that last couple of months.  I can’t analyse or reflect on them yet, but I need to write them down so that they lessen their hold over me.

Probably the most obvious, is the therapeutic rupture with Liz.  It destabilised me.  It re-enforced all the old messages about me being too difficult to cope with, and made me feel as if I would never heal.  I still don’t think that the new therapist will cope…  She says she’s one of the top therapists in the small city where we live; but then, Bob was one of the top clinical psychologists, and that didn’t turn out well.  We’re still not sure if ACC will fund us to see her; so until funding is established, we’re seeing her fortnightly.  I know that isn’t often enough, but we can’t afford weekly therapy.

Once you get past the obvious of therapy, there’s the other given… work.  We recently had a change to our union negotiated employment agreement.  The new agreement meant that we ended up with a negative sick leave balance.  We’d used up so much sick leave in the short time we’ve been there, that we’d used the equivalent of an extra years allowance.  This basically meant that we were going to have to go for over a year, with any sick leave being unpaid.  There’s no way we could afford that.  Our union is incredibly weak and unable to fight for the rights of the worker – if you wonder why I’m in such a weak union, librarians are traditionally left wing, socialists who believe in unions, and so there’s a great deal of pressure to join.

So, ignoring the union, we researched the law and questioned work on the validity of the negative balance, when according the the Holidays Act, each employee must have five days paid sick leave per year.  We sent through an email outlining the law, and asking what that meant in regards to our negative balance.  This resulted in a meeting with HR (hence the entry about the panic attack).  The meeting was mercifully quick and resulted in HR apologising to me for any distress caused.  They also gave me five sick days immediately, and another five in six months time.

We had been expecting a written warning about our excessive sick leave.  During the negotiations, our employer had been talking about “sick leave abusers”.  When we saw that negative balance, we immediately knew that we were one of the people being targeted.  We doubted all of the work we’ve been doing.  We don’t feel as if we’ve been performing to an even half descent standard lately.  So again, all our fears and inadequacies were thrown into the spot light.

The other obvious stress has been the divorce.  We got the papers served on the ex-husband, and immediately started to get hang up phone calls.  They were at odds times of the day and lasted for a week, ending only when we picked up the phone once and asked who was there.  This led to all sorts of flashbacks and activation of parts who used to deal with the ex-husband.

Which probably leads into the other issue I’ve been facing… increasing amounts and severity of self injury.  It’s been a really tough few weeks, lots of lost time and negative coping mechanisms being used.  I know I’m going to have to tell the new therapist about this, but it’s so shame inducing that I don’t know how.  I keep thinking that I should be “strong enough” or “healed enough” not to do those old coping mechanisms… but yet fall back into them when the going gets really bad.

Then there’s the last big thing which feels so awful and… just yuck.  I’m friends with the younger of my two brothers on FaceBook.  A few months ago, a photo was added to his profile.  It’s not an awful photo, it’s actually a really good one, which shows his body language as I remember it.  The thing that sends the system into chaos however, is that the lower half of his face is almost exactly the same as the fathers.  The mouth is the same… as is the chin.  It drives some in the system crazy.  My brother is now the age that the father would have been when we were in our early teens.  As I write this, I feel the dissociation coming.  I know this is a huge trigger.  I know that sometimes one of us looks at this photo of our brother as a punishment.

Far out… that’s all I can write… sorry, I know this doesn’t make much sense.  But I needed to get it out in some way.

In all the craziness, I’m reminded of the lines from Hymn to Her…

She will always carry on
Something is lost
But something is found

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Now playing: The Pretenders – Hymn To Her
via FoxyTunes

It always starts out small… or seemingly so.  That one last trigger that pushes you over the edge… some threat to safety… the hint of a flashback… a confrontation at work…

Then…

The heart starts to race… you feel it pounding and hear the blood rushing in your head.  Breathing feels impossible… like you’re breathing through a straw… but, it doesn’t matter anyway, because you don’t have any lungs… your breath goes no where, it’s just an activity for your mouth to do out of habit. You put your hand on your stomach to try and force yourself to actively breathe deeply… but your stomach muscles move purely on reflex.

Fuzziness hits… lips tingle… then the rest of your face.  Palms sweaty and no longer associated with your body.  Legs disconnected and unable to move.

And the noise…

Screaming internally… strong voices trying to cut through the chatter.  All to no avail.  It’s lost in the torrent of chatter and screaming.

You feel the dissociation pull… but it doesn’t happen soon enough.  A door has opened into the hell inside your head and there’s no going back.  No longer adult… now a seething mass of voices screaming out in pain.

Just stop the heart… don’t slow it down, stop it.  Anything for relief…

The tightness travels across your chest into your arms… the clinical side of you wonders if this is a heart attack.

Head swimming and mushy now… the screaming echoing around.

But always, hypervigilant of what’s going on around you… you back slowly to a wall… scanning the room for any threat.  Trying to contain the crazy and appear normal… please don’t let anyone notice…

Noise jars you into a startle response…

Your movements become stilted… every muscle aches from tension.  Your body is ready to sprint for safety, but it doesn’t know which way to go.

Time warps… seeming to slow down, yet race at the same time… it feels as if this moment will never end.

Then, mercifully… you feel the Earth tilt… yes… blissful oblivion.

Blackness of dissociation… feeling the rush of the protectors coming forward… slowly the noise fades away.

Sleep… blissful sleep.  Only to wake an hour later as if coming out of a cotton wool cocoon… your voice is a little louder than usual.  But that’s understandable, because you feel as if you’re looking out at the world from about 5 paces behind your eyes.

The noise from the outside world echoes around in your head…

Nothing seems real.  Derealisation settles in… your hands belong to someone else, colours seem brighter and everything is disjointed.

Drugs… too late for the panic attack, but it might help with the derealisation.  A fear that the protectors took some during the dissociation… you start to second guess yourself.  But you can’t go on like this, so risk the drugs anyway.

Covert looks around… no one sees you popping the pills.  Just breathe…

Finally you feel that rush of air go into your lungs… the big ball of tightness at the top of your chest slowly eases…

Slowly, the automatic actions ease and control returns.

But there’s still that nagging fear… it will be worse next time… someone will see next time… you can’t do that again…

Internally the chaos is stamped back down… layers of dissociation bury the screaming… different ones are returned to their cells… locked away and ignored…

Until next time…

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Now playing: Natalie Merchant – My Skin
via FoxyTunes

Over the last week, I’ve felt what I can only describe as a changing of the guard.  I’m not sure what it means, or what the impact will be, but there is a definite internal shift.  There are ones coming forward who haven’t been active in over ten years… ones who love going out to pubs, ones who love socialisation and hate the insular life we now lead.  This all sounds really positive; but it also means more lost time, as these ones have little understanding of the rest of the system, and almost no motivation to learn.

I don’t know what this will mean long term, and I know it’s probably a reaction to starting with a new therapist.  But it’s scary…  It’s also raises the question as to “who is the real me?”  Maybe I’m the autonomous imposter?  Maybe these parts are the “real castorgirl”?  They sure live more than I do.